RSD and Intrathecal Pumps

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Recommend Delete Message 3 of 4 in Discussion

From: Katiedid2256 Sent: 11/10/2006 9:36 PM
robin,i have a morphine pump,it was inplanted 07/04 and it has helped me my
rsd is now full body,and iam on a trial for phrait is a new med used only in
pumps.i cant say the pump makes me pain free,but i wouldnt want to lose
it.it makes the pain so at least i can stan it most of the time.val


>From: "byrd45" <EARLIBYRD@msn.com>
>Reply-To: "RSD Outreach" <RSDOutreach@groups.msn.com>
>To: "RSD Outreach" <RSDOutreach@groups.msn.com>
>Subject: RSD and Intrathecal Pumps
>Date: Fri, 10 Nov 2006 07:04:02 -0800
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> RSD and Intrathecal Pumps
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> From: <NOBR>byrd45</NOBR> (Original Message) Sent:
>9/12/2006 4:48 PM
>
>Hi Everyone,
>This week I thought it would be interesting to discuss RSD and the use of
>intrathecal pumps for pain control purposes. I personally do not have a
>pump inplanted but have met several different people who have expressed
>varied opinions on this procedure. I have heard some people say that it
>helped them and a few others say it helped for awhile and others didn't
>feel as positive. Just like any procedure you are going to hear good and
>bad and I think the best for all of us is to learn about it and then if
>there comes a time where we have a decision to make for ourselves we know
>what we are looking at. Let's find out more about intrathecal pumps. First
>here are some most frequently asked questions.......
>Intrathecal Pump Implant ("Spinal Morphine Pump") FAQ’s
>The following Frequently Asked Questions and the answers are for the
>Intrathecal Pump Implant ("Spinal Morphine Pump"). The following material
>is given as general information only, and is not to be considered as
>medical advice or consultation. The information was prepared by the TPM
>staff.
>Download PDF version of FAQs
>
>What is an Intrathecal Pump Implant ("Spinal Morphine Pump")?
>An Intrathecal Pump is a specialized device, which delivers concentrated
>amounts of medication(s) into spinal cord area via a small catheter
>(tubing). What is an Intrathecal Pump Implant ("Spinal Morphine Pump")?
>An Intrathecal Pump is a specialized device, which delivers concentrated
>amounts of medication(s) into spinal cord area via a small catheter
>(tubing).
>Am I a candidate for Intrathecal Pump Implant ("Spinal Morphine Pump")?
>Currently at TPM, Intrathecal Pump is offered to patients with :
> Chronic and severe pain, who have not adequately responded to other
>treatment modalities. Some of the examples are failed back syndrome, cancer
>pain, RSD. These patients receive infusion of painkillers such as Morphine
>or Dilaudid. Spastic disorders such as Multiple Sclerosis, Spinal Cord
>Injury - associated with muscle spasms. These patients receive infusion of
>an antispasmodic medication called Baclofen.
>What is the purpose of it?
>This device delivers concentrated amounts of medication into spinal cord
>area allowing the patient to decrease or eliminate the need for oral
>medications. It delivers medication around the clock, thus eliminating or
>minimizing breakthrough pain and/or other symptoms.
>How long does the procedure take?
>It is done in two stages. In the first stage, a single injection is made to
>assess effectiveness and screen for unwanted side effects. If this trial is
>successful in relieving symptoms, then the permanent device is placed under
>the skin. The patients have to meet certain other screening criteria before
>implanting the pump.
>Will the procedure hurt?
>The procedure involves inserting a needle through skin and deeper tissues
>(like a "tetanus shot"). So, there is some discomfort involved. However, we
>numb the skin and deeper tissues with a local anesthetic using a very thin
>needle prior to inserting the needle. Most of the patients also receive
>intravenous sedation and analgesia, which makes the procedure easy to
>tolerate.
>Will I be "put out" for this procedure?
>The placement of the tubing is done under local anesthesia with patients
>mildly sedated. The amount of sedation given generally depends upon the
>patient tolerance.
>For the pump placement, patients are given stronger intravenous sedation
>and analgesia.
>How is the procedure performed?
>It is done with the patient lying on the side. Sometimes the tubing is
>placed with the patient sitting up. The patients are monitored with EKG,
>blood pressure cuff and blood oxygen-monitoring device. The skin is cleaned
>with antiseptic solution and then the procedure is carried out. X-ray
>(fluoroscopy) is used to guide the needle for inserting the tubing.
>Where is the tubing inserted? Where is the pump placed?
>Tubing is inserted in the midline at the lower back. The pump is then
>placed on the side of the abdomen.
>What should I expect after the procedure?
>If the procedure is successful, you may feel that your pain may be
>controlled or quite less. The pump is adjusted electronically to deliver
>adequate amount of medication.
>What should I do after the procedure?
>This procedure is normally a day-procedure and patients are kept overnight
>for observation and pump adjustment.
>How long will the pumps last?
>The medication contained within the pump will last about 1 to 3 months
>depending upon the concentration and amount infused. It is then refilled
>via a tiny needle inserted into the pump chamber. This is done in the
>office or at your home and it takes only a few minutes.
>The batteries in the pump may last 3 to 5 years depending upon the usage.
>The batteries can not be replaced or recharged. The pump is replaced at
>that time.
>Will the Intrathecal Pump Implant ("Spinal Morphine Pump") help me?
>It is very difficult to predict if the procedure will indeed help you or
>not. For that reason a trial is carried out to determine if a permanent
>device (pump) will be effective to relieve your pain or not.
>What are the risks and side effects?
>Generally speaking, this procedure is safe. However, with any procedure
>there are risks, side effects, and possibility of complications. Please
>discuss your concerns with your physician.
>Who should not have this procedure?
>If you are on a blood thinning medication (e.g. Coumadin), or if you have
>an active infection going on, you should not have the procedure. The
>patients also have to meet certain other screening criteria before
>implanting the pump.
>Where can I get additional information?
>More detailed information is available from the manufacturer of this
>device. At the time of consultation you will receive a Synchromed Infusion
>System Patient Education Booklet. Additional information is also available
>at the Medtronics Web Site @ http://www.medtronics.com/neuro/apt/faq.html.
>check out this link they explain step by step the implant procedure
>http://www.pain-management-center.com/intra.html
>check out all the info on the medtronics site! You can even sign up to be
>on their tame the pain mailing list or order an information packet.
>http://www.medtronic.com/neuro/paintherapies/pain_treatment_ladder/drug_infusion/drug_drug_deliv.html#hist
>
>Here is some info I found on Baclofen pumps which is used for severe muscle
>spasms. They explain the pump delivery system as follows......
>What Is the Intrathecal Baclofen Pump System?
>The intrathecal Baclofen pump system is the way doctors give the drug
>directly into the spinal fluid. The system consists of a catheter (a small,
>flexible tube) and a pump. The pump -- a round metal disc, about one inch
>thick and three inches in diameter -- is surgically placed under the skin
>of the abdomen near the waistline.
>The pump stores and releases prescribed amounts of medicine through the
>catheter. The pump is refilled by inserting a needle through the skin into
>a filling port in the center of the pump. With a programmable pump, a tiny
>motor moves the medication from the pump reservoir through the catheter.
>Using an external programmer, your treatment team can make adjustments in
>the dose, rate, and timing of the medication.
>People with the pump must return to their doctor's office for pump refills
>and medication adjustments, typically every 2-3 months. The pump is taken
>out and replaced at the end of the battery's life span (which is usually 5
>to 7 years).
>If you would like to read the other information they had there here is the
>link.....
>http://www.medicinenet.com/baclofen_pump_therapy/article.htm
> Well there was alot more information out there than I thought there would
>be! I hope you were interested in finding out about intrathecal
>pumps,morphine pumps baclofen pumps are all just other types. It just
>depends what type of medicine they need to administer through the pump. I
>had no idea that they had been in use since the 1980's. I would love to
>hear your input or experiences with intrathecal pumps and RSD. Just add
>them to this post.
> Love,
> Robyn
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Recommend Delete Message 4 of 4 in Discussion

From: byrd45 Sent: 11/15/2006 11:34 AM
Hi Val,
I'm glad it is helping even if it is only partly. I think the same way whatever helps I will try. I hope the new medicine works out for you. Let us know how things go with it and talk to you soon!
Love,
Robyn

>What is an Intrathecal Pump Implant ("Spinal Morphine Pump")?
>An Intrathecal Pump is a specialized device, which delivers concentrated
>amounts of medication(s) into spinal cord area via a small catheter
>(tubing). What is an Intrathecal Pump Implant ("Spinal Morphine Pump")?
>An Intrathecal Pump is a specialized device, which delivers concentrated
>amounts of medication(s) into spinal cord area via a small catheter
>(tubing).
>Am I a candidate for Intrathecal Pump Implant ("Spinal Morphine Pump")?
>Currently at TPM, Intrathecal Pump is offered to patients with :
> Chronic and severe pain, who have not adequately responded to other
>treatment modalities. Some of the examples are failed back syndrome, cancer
>pain, RSD. These patients receive infusion of painkillers such as Morphine
>or Dilaudid. Spastic disorders such as Multiple Sclerosis, Spinal Cord
>Injury - associated with muscle spasms. These patients receive infusion of
>an antispasmodic medication called Baclofen.
>What is the purpose of it?
>This device delivers concentrated amounts of medication into spinal cord
>area allowing the patient to decrease or eliminate the need for oral
>medications. It delivers medication around the clock, thus eliminating or
>minimizing breakthrough pain and/or other symptoms.
>How long does the procedure take?
>It is done in two stages. In the first stage, a single injection is made to
>assess effectiveness and screen for unwanted side effects. If this trial is
>successful in relieving symptoms, then the permanent device is placed under
>the skin. The patients have to meet certain other screening criteria before
>implanting the pump.
>Will the procedure hurt?
>The procedure involves inserting a needle through skin and deeper tissues
>(like a "tetanus shot"). So, there is some discomfort involved. However, we
>numb the skin and deeper tissues with a local anesthetic using a very thin
>needle prior to inserting the needle. Most of the patients also receive
>intravenous sedation and analgesia, which makes the procedure easy to
>tolerate.
>Will I be "put out" for this procedure?
>The placement of the tubing is done under local anesthesia with patients
>mildly sedated. The amount of sedation given generally depends upon the
>patient tolerance.
>For the pump placement, patients are given stronger intravenous sedation
>and analgesia.
>How is the procedure performed?
>It is done with the patient lying on the side. Sometimes the tubing is
>placed with the patient sitting up. The patients are monitored with EKG,
>blood pressure cuff and blood oxygen-monitoring device. The skin is cleaned
>with antiseptic solution and then the procedure is carried out. X-ray
>(fluoroscopy) is used to guide the needle for inserting the tubing.
>Where is the tubing inserted? Where is the pump placed?
>Tubing is inserted in the midline at the lower back. The pump is then
>placed on the side of the abdomen.
>What should I expect after the procedure?
>If the procedure is successful, you may feel that your pain may be
>controlled or quite less. The pump is adjusted electronically to deliver
>adequate amount of medication.
>What should I do after the procedure?
>This procedure is normally a day-procedure and patients are kept overnight
>for observation and pump adjustment.
>How long will the pumps last?
>The medication contained within the pump will last about 1 to 3 months
>depending upon the concentration and amount infused. It is then refilled
>via a tiny needle inserted into the pump chamber. This is done in the
>office or at your home and it takes only a few minutes.
>The batteries in the pump may last 3 to 5 years depending upon the usage.
>The batteries can not be replaced or recharged. The pump is replaced at
>that time.
>Will the Intrathecal Pump Implant ("Spinal Morphine Pump") help me?
>It is very difficult to predict if the procedure will indeed help you or
>not. For that reason a trial is carried out to determine if a permanent
>device (pump) will be effective to relieve your pain or not.
>What are the risks and side effects?
>Generally speaking, this procedure is safe. However, with any procedure
>there are risks, side effects, and possibility of complications. Please
>discuss your concerns with your physician.
>Who should not have this procedure?
>If you are on a blood thinning medication (e.g. Coumadin), or if you have
>an active infection going on, you should not have the procedure. The
>patients also have to meet certain other screening criteria before
>implanting the pump.
>Where can I get additional information?
>More detailed information is available from the manufacturer of this
>device. At the time of consultation you will receive a Synchromed Infusion
>System Patient Education Booklet. Additional information is also available
>at the Medtronics Web Site @ http://www.medtronics.com/neuro/apt/faq.html.
>check out this link they explain step by step the implant procedure
>http://www.pain-management-center.com/intra.html
>check out all the info on the medtronics site! You can even sign up to be
>on their tame the pain mailing list or order an information packet.
>http://www.medtronic.com/neuro/paintherapies/pain_treatment_ladder/drug_infusion/drug_drug_deliv.html#hist
>
>Here is some info I found on Baclofen pumps which is used for severe muscle
>spasms. They explain the pump delivery system as follows......
>What Is the Intrathecal Baclofen Pump System?
>The intrathecal Baclofen pump system is the way doctors give the drug
>directly into the spinal fluid. The system consists of a catheter (a small,
>flexible tube) and a pump. The pump -- a round metal disc, about one inch
>thick and three inches in diameter -- is surgically placed under the skin
>of the abdomen near the waistline.
>The pump stores and releases prescribed amounts of medicine through the
>catheter. The pump is refilled by inserting a needle through the skin into
>a filling port in the center of the pump. With a programmable pump, a tiny
>motor moves the medication from the pump reservoir through the catheter.
>Using an external programmer, your treatment team can make adjustments in
>the dose, rate, and timing of the medication.
>People with the pump must return to their doctor's office for pump refills
>and medication adjustments, typically every 2-3 months. The pump is taken
>out and replaced at the end of the battery's life span (which is usually 5
>to 7 years).
>If you would like to read the other information they had there here is the
>link.....
>http://www.medicinenet.com/baclofen_pump_therapy/article.htm
> Well there was alot more information out there than I thought there would
>be! I hope you were interested in finding out about intrathecal
>pumps,morphine pumps baclofen pumps are all just other types. It just
>depends what type of medicine they need to administer through the pump. I
>had no idea that they had been in use since the 1980's. I would love to
>hear your input or experiences with intrathecal pumps and RSD. Just add
>them to this post.
> Love,
> Robyn
>
>
>
>
>
>
> View other groups in this category.
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>
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Recommend Delete Message 3 of 3 in Discussion

From: <NOBR>byrd45</NOBR> Sent: 9/18/2006 8:11 AM
Hi Val,
I hope the prialt trial goes well. Let us know how it turns out for youand best of luck too! Do You think getting the pump was worth it to you pain relief wise? Curious about how much pain relief it gives you. I hope it is helping you alot.
Love,
Robyn

Reply
Recommend Delete Message 1 of 1 in Discussion

From: byrd45 (Original Message) Sent: 10/3/2006 3:22 PM
This week I thought it would be interesting to discuss RSD and the use of intrathecal pumps for pain control purposes. I personally do not have a pump inplanted but have met several different people who have expressed varied opinions on this procedure. I have heard some people say that it helped them and a few others say it helped for awhile and others didn't feel as positive. Just like any procedure you are going to hear good and bad and I think the best for all of us is to learn about it and then if there comes a time where we have a decision to make for ourselves we know what we are looking at. Let's find out more about intrathecal pumps. First here are some most frequently asked questions.......

Intrathecal Pump Implant ("Spinal Morphine Pump") FAQ’s

The following Frequently Asked Questions and the answers are for the Intrathecal Pump Implant ("Spinal Morphine Pump"). The following material is given as general information only, and is not to be considered as medical advice or consultation. The information was prepared by the TPM staff.

Download PDF version of FAQs
language=javascript> </SCRIPT>



What is an Intrathecal Pump Implant ("Spinal Morphine Pump")?
An Intrathecal Pump is a specialized device, which delivers concentrated amounts of medication(s) into spinal cord area via a small catheter (tubing). What is an Intrathecal Pump Implant ("Spinal Morphine Pump")?
An Intrathecal Pump is a specialized device, which delivers concentrated amounts of medication(s) into spinal cord area via a small catheter (tubing).

Am I a candidate for Intrathecal Pump Implant ("Spinal Morphine Pump")?
Currently at TPM, Intrathecal Pump is offered to patients with :

Chronic and severe pain, who have not adequately responded to other treatment modalities. Some of the examples are failed back syndrome, cancer pain, RSD. These patients receive infusion of painkillers such as Morphine or Dilaudid.
Spastic disorders such as Multiple Sclerosis, Spinal Cord Injury - associated with muscle spasms. These patients receive infusion of an antispasmodic medication called Baclofen.


What is the purpose of it?
This device delivers concentrated amounts of medication into spinal cord area allowing the patient to decrease or eliminate the need for oral medications. It delivers medication around the clock, thus eliminating or minimizing breakthrough pain and/or other symptoms.

How long does the procedure take?
It is done in two stages. In the first stage, a single injection is made to assess effectiveness and screen for unwanted side effects. If this trial is successful in relieving symptoms, then the permanent device is placed under the skin. The patients have to meet certain other screening criteria before implanting the pump.

Will the procedure hurt?
The procedure involves inserting a needle through skin and deeper tissues (like a "tetanus shot"). So, there is some discomfort involved. However, we numb the skin and deeper tissues with a local anesthetic using a very thin needle prior to inserting the needle. Most of the patients also receive intravenous sedation and analgesia, which makes the procedure easy to tolerate.

Will I be "put out" for this procedure?
The placement of the tubing is done under local anesthesia with patients mildly sedated. The amount of sedation given generally depends upon the patient tolerance.

For the pump placement, patients are given stronger intravenous sedation and analgesia.

How is the procedure performed?
It is done with the patient lying on the side. Sometimes the tubing is placed with the patient sitting up. The patients are monitored with EKG, blood pressure cuff and blood oxygen-monitoring device. The skin is cleaned with antiseptic solution and then the procedure is carried out. X-ray (fluoroscopy) is used to guide the needle for inserting the tubing.

Where is the tubing inserted? Where is the pump placed?
Tubing is inserted in the midline at the lower back. The pump is then placed on the side of the abdomen.

What should I expect after the procedure?
If the procedure is successful, you may feel that your pain may be controlled or quite less. The pump is adjusted electronically to deliver adequate amount of medication.

What should I do after the procedure?
This procedure is normally a day-procedure and patients are kept overnight for observation and pump adjustment.

How long will the pumps last?
The medication contained within the pump will last about 1 to 3 months depending upon the concentration and amount infused. It is then refilled via a tiny needle inserted into the pump chamber. This is done in the office or at your home and it takes only a few minutes.

The batteries in the pump may last 3 to 5 years depending upon the usage. The batteries can not be replaced or recharged. The pump is replaced at that time.

Will the Intrathecal Pump Implant ("Spinal Morphine Pump") help me?
It is very difficult to predict if the procedure will indeed help you or not. For that reason a trial is carried out to determine if a permanent device (pump) will be effective to relieve your pain or not.

What are the risks and side effects?
Generally speaking, this procedure is safe. However, with any procedure there are risks, side effects, and possibility of complications. Please discuss your concerns with your physician.

Who should not have this procedure?
If you are on a blood thinning medication (e.g. Coumadin), or if you have an active infection going on, you should not have the procedure. The patients also have to meet certain other screening criteria before implanting the pump.

Where can I get additional information?
More detailed information is available from the manufacturer of this device. At the time of consultation you will receive a Synchromed Infusion System Patient Education Booklet. Additional information is also available at the Medtronics Web Site @ http://www.medtronics.com/neuro/apt/faq.html.

check out this link they explain step by step the implant procedure

http://www.pain-management-center.com/intra.html

check out all the info on the medtronics site! You can even sign up to be on their tame the pain mailing list or order an information packet.

http://www.medtronic.com/neuro/paintherapies/pain_treatment_ladder/drug_infusion/drug_drug_deliv.html#hist



Here is some info I found on Baclofen pumps which is used for severe muscle spasms. They explain the pump delivery system as follows......

What Is the Intrathecal Baclofen Pump System?

The intrathecal Baclofen pump system is the way doctors give the drug directly into the spinal fluid. The system consists of a catheter (a small, flexible tube) and a pump. The pump -- a round metal disc, about one inch thick and three inches in diameter -- is surgically placed under the skin of the abdomen near the waistline.

The pump stores and releases prescribed amounts of medicine through the catheter. The pump is refilled by inserting a needle through the skin into a filling port in the center of the pump. With a programmable pump, a tiny motor moves the medication from the pump reservoir through the catheter. Using an external programmer, your treatment team can make adjustments in the dose, rate, and timing of the medication.

People with the pump must return to their doctor's office for pump refills and medication adjustments, typically every 2-3 months. The pump is taken out and replaced at the end of the battery's life span (which is usually 5 to 7 years).

If you would like to read the other information they had there here is the link.....

http://www.medicinenet.com/baclofen_pump_therapy/article.htm

Well there was alot more information out there than I thought there would be! I hope you were interested in finding out about intrathecal pumps,morphine pumps baclofen pumps are all just other types. It just depends what type of medicine they need to administer through the pump. I had no idea that they had been in use since the 1980's. I would love to hear your input or experiences with intrathecal pumps and RSD. Just add them to this post.

Love,

Robyn



<NOBR>First </NOBR> <NOBR>Previous </NOBR> <NOBR>2-3 of 3 </NOBR> <NOBR>Next </NOBR> <NOBR>Last </NOBR> <NOBR>Delete Replies </NOBR>

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Recommend Delete Message 2 of 3 in Discussion

From: <NOBR>Katiedid2256</NOBR> Sent: 9/12/2006 9:47 PM
robyn,i have had my morphine pump inplanted for alittle over 2 yrs it has
helped some but rsd has spread to full body.iam going to go on trial for
prialt in my pump also as some as workers comp aproves itanyone with
questions about pump can email.me kayef_3@hotmail.com i have also had scs so
i might be able to answer some.luv val


>From: "byrd45" <EARLIBYRD@msn.com>
>Reply-To: "RSD Outreach" <RSDOutreach@groups.msn.com>
>To: "RSD Outreach" <RSDOutreach@groups.msn.com>
>Subject: Weekly Discussion-RSD and Intrathecal Pumps
>Date: Tue, 12 Sep 2006 13:48:15 -0700
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> New Message on RSD Outreach
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> Weekly Discussion-RSD and Intrathecal Pumps
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> Reply
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> Reply to Sender
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> From:
> byrd45
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>
>Hi Everyone,
>This week I thought it would be interesting to discuss RSD and the use of
>intrathecal pumps for pain control purposes. I personally do not have a
>pump inplanted but have met several different people who have expressed
>varied opinions on this procedure. I have heard some people say that it
>helped them and a few others say it helped for awhile and others didn't
>feel as positive. Just like any procedure you are going to hear good and
>bad and I think the best for all of us is to learn about it and then if
>there comes a time where we have a decision to make for ourselves we know
>what we are looking at. Let's find out more about intrathecal pumps. First
>here are some most frequently asked questions.......
>Intrathecal Pump Implant ("Spinal Morphine Pump") FAQ’s
>The following Frequently Asked Questions and the answers are for the
>Intrathecal Pump Implant ("Spinal Morphine Pump"). The following material
>is given as general information only, and is not to be considered as
>medical advice or consultation. The information was prepared by the TPM
>staff.
>Download PDF version of FAQs
>