FWD:RSDHope-Help Spread Awareness

byrd45 Mon Feb 02, 2009 3:55 pm

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From: byrd45 (Original Message) Sent: 4/30/2006 9:02 AM
AMERICAN RSDHOPE UPDATE

MEDIA PROJECT FOR PARSON'S SCHOOL OF DESIGN STUDENTS

Folks;

Once again we have been presented with an opportunity to spread awareness of RSDS.

I was approached by some of the students from the Parson's School of Design, in Greenwich Village.

They are putting together a presentation/book on RSD and need our help.

After they present the book to their class, the book along with a petition will be sent to Congress in support of H.R. 1020 bill.

H.R.1020

Title: To declare adequate pain care research, education, and treatment as national public health priorities, and for other purposes.

Sponsor: Rep Rogers, Mike (MI)

Text of Legislation;
http://thomas.loc.gov/cgi-bin/query/z?c109:H.R.1020

To see if your Representative has co-sponsored this legislation, check this link;

http://thomas.loc.gov/cgi-bin/bdquery/D?d109:6:./temp/~bdm0WO:@@@P

Mike Rogers, the representative in charge of this bill regarding pain therapy can use the book to further push the passing of this great bill.

Here is what they need from us;

We were wondering if you had any photos of people with RSD that we could include in the book, photo's of faces, RSD-affected areas, etc.

They need to put a name to this disease, a face to it. They need to be able to show to the other Representatives what our particular type of pain disease can do to the body.

Here is where it gets tricky.

They need these pictures in the next few days so they can be included in their project on Thursday May 4th, so get them in to them as soon as possible.

The pictures must be in jpeg format that could be emailed to Jonathan Cohen at the following email address; COHEJ874@newschool.edu

Please forward this on to your groups, chat rooms, listservs, etc. with the utmost urgency.

Thank you everyone;

Peace, Keith

American RSDHope

(do not email them to RSDHope. Email them ONLY to Jonathan Cohen at the above email address)