FWD:RSDHope-Help Spread Awareness
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FWD:RSDHope-Help Spread Awareness
byrd45 Mon Feb 02, 2009 3:59 pm
Awareness Ideas : FWD:RSDHope-Help Spread Awareness
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From: byrd45 (Original Message) Sent: 10/25/2006 9:19 AM
AMERICAN RSDHOPE UPDATE - SEPTEMBER 24, 2006
AMERICAN RSDHOPE ANNOUNCES $7,500 DONATION TO ORGANIZATION MAKING RSD DOCUMENTARY!
DETAILS ON RSD DOCUMENTARY NOW AVAILABLE ON-LINE
ONLY 55 SPACES LEFT FOR RSD CONFERENCE IN 6 WEEKS!
1) AMERICAN RSDHOPE ANNOUNCES $7,500 DONATION TO ORGANIZATION MAKING RSD DOCUMENTARY!
In what they hope will just be the first of many organizations to donate, the American RSDHope Board of Directors approved a donation of $7,500 this month, September 2006, to the RSD Aid & Awareness Organization to be used for their upcoming Documentary on RSD.
You can read all the details about the donation and about this new RSD Documentary on our website;
http://www.rsdhope.org/ShowPage.asp?page_id=156
Here are some of the details!
Barry Adler and his wife formed a non-profit organization called RSD Aid & Awareness to raise funds to film a documentary on RSD. Barry's wife was diagnosed with RSD over a year ago. Barry happens to own a production company called Impactmedia and has an extensive background in media presentation having produced everything from feature films and television series to commercials and medical films. He and his wife soon learned what we all do, that very little seems to be known about RSD and so he was driven to do this project.
His plans are to film a documentary, take the moviegoer on a journey through the land of RSD through his eyes. He will also be interviewing other patients, their loved ones, Doctors, medical professionals, etc. He plans to bring the finished product to the various film festivals and eventually get it out to theaters across the US, Canada, and eventually ending up on television; possibly HBO or the Discovery Channel for instance.
it is an ambitious project and many of us in the community have talked about the need for just such a project for years but haven't had anyone with the knowledge or tools to get it done. Now we do. Now it is up to the community to step forward and put the funding in place to make sure this gets done. It will take a great deal of money to be sure. $7,500 is only the beginning.
American RSDHope is hoping other Organizations; RSD, Pain, Disability, whatever their affiliation, will step forward and match or beat our donation!
If you run a support group and have the finances, see if you can match it. If you need to, work with another group or two or ten to match it. Hold fundraisers!
Or just donate what you can, $1000, $500, any amount. Write to your local Masonic organizations, Lion's Clubs, or whatever fellowship organizations are active in your area and see if you can get them interested. Talk to your local newspaper and television station. Barry Adler will be more than happy to talk to anyone at anytime about this project if it will raise the awareness level of it and bring in some more funding.
In October, down in Fort Lauderdale, FL, they will be holding a large fundraiser for the RSD Aid & Awareness organization to raise money for the documentary. If you are down there, stop on by. I will share details on it in the coming weeks.
Barry will be bringing his camera crew to American RSDHope's RSD Conference in South Portland, Maine on November 3rd and 4th to tape some patient interviews and film parts of the conference for the documentary. If you haven't already made plans to be there we still have about 60 spaces left but they probably won't last past the end of the month so register quickly. It is going to be our best conference yet by the way with some amazing giveaways as well as the latest information on Ketamine and RSD and we will be sharing ways to ease your pain, always a good thing!
So please help us spread the word on this project! Stop by the website and learn all about it. Go to the link shown above and below or just stop by the main page and look under the WHAT'S NEW Section, you can't miss it! This is our chance to put RSD on the map folks! Imagine seeing a movie at the theatre on RSD! Or even on HBO! Then having it get to the Medical Schools! we can advance further in one year with this than we have in the last ten!
Thanks in advance for your help. If you have any questions, drop me an email ( RSDHope@mail.org ) or drop one to Barry Adler. His email is flatwins@myacc.net
2) DETAILS ON RSD DOCUMENTARY NOW AVAILABLE ON-LINE
RSD Documentary! Details!
http://www.rsdhope.org/ShowPage.asp?page_id=156
3) ONLY 55 SPACES LEFT FOR RSD CONFERENCE IN 6 WEEKS!
Here are the basics for you though
Cost is only $65 per person
WHAT DOES THAT INCLUDE?
It includes the Workshops on Friday and the main Conference on Saturday.
It includes sandwiches/chips/drinks/etc. on Friday night for those arriving before the Workshops
It includes a buffet breakfast on Saturday as well as a hot/cold buffet lunch and snack breaks!
It also includes all of the hand-outs, work-sheets, and even a free copy of the book " PERSISTENCE IS POWER, A REAL WORLD GUIDE FOR THE NEWLY DISABLED WORKER" By Jeanne Lazo and Carol Amato.
In addition, there will be some giveaways including over 20 books dealing with Coping with Chronic Pain!
You can register for the conference by going to our website, or by calling our office at 207 583 4589. We still have about 55 to 60 spots left.
We have some fantastic speakers too;
Doctor Ronald Harbut who, with Doctor Correll, developed the low-dose ketamine infusion method to treat RSD, will be presenting the latest information on ketamine and RSD as well as his latest patient treatment results. He will also present an overview of exactly how ketamine works with RSD to decrease the pain. Doctor Harbut has had papers published in peer-reviewed journals like the Journal of Pain Medicine and recently spoke at the AAPM's national meeting in San Diego, CA.
Doctor Allan Chino, author of "Validate Your Pain!: Exposing the Chronic Pain Cover-Up", will be focusing on "Beyond the Biomedical: Chronic Pain as a (Hidden) Signaling System". Currently in private practice near Portland, Oregon, Dr. Chino, Ph.D., ABPP is board certified in Clinical Health Psychology and Past President of the American Academy of Clinical Health Psychology. He serves on the Oregon Pain Management Commission which is charged with providing the legislature with recommendations for improving and removing barriers to the provision of effective, high-quality pain management services.
The conference will begin with Keith Orsini, one of the Directors of American RSDHope, as well as a 32 year survivor of RSD. Keith will be speaking about "Living Beyond Your Pain", focusing on how to live the life you want in spite of the pain. In our daily battle with pain we lose a little ground every day and in doing so we lose a little bit of ourselves. Pretty soon the life we have left isn't much of a life and is nothing like the life we wanted or intended for ourselves. Keith is going to show you some ways to change that!
There are also workshops on Friday evening, one for patients led by Doctor Chino and one for loved ones and friends led by some of our loved ones! Medical professionals are free to attend either workshop of course.
And don't forget, the RSD Documentary film crew will be there!
So if you had thought about coming to an RSD conference, this is the year to come. This is going to be the best conference we have ever had and we have had 8 others before this one! American RSDHope will not be holding a conference in 2007 and probably not in 2008 either so don't put it off until next time!
Less than 55 spots are left as of September 22, 2006, out of 200. The weather is not bad the first weekend in November here, about 50 degrees during the daytime, besides, you will be indoors! Drive up and see the foliage along the way! Or fly in, Portland Jetport services many Airlines including the discount airline JETBLUE! You can even take Amtrak to Portland now!
Check out all of the details by going to our conference webpage;
http://www.rsdhope.org/ShowPage.asp?page_id=48
Or you can call our home office at 207 583 4589
Don't delay folks, it is getting down to crunch-time!
Only $65 per person!
Please spread the word to your groups, fellow patients, Doctors, friends, listservs, email lists, etc. We would greatly appreciate it. We expect a full house again this year, 200 attendee's, and we are almost there already so get your registration in quickly!
Peace,
Keith Orsini
American RSDHope
www.RSDHope.org
National RSDS/CRPS Conference - November 3rd, 4th, 2006
http://www.rsdhope.org/ShowPage.asp?page_id=48
New RSD Documentary! Details!
http://www.rsdhope.org/ShowPage.asp?page_id=156
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From: byrd45 (Original Message) Sent: 10/25/2006 9:19 AM
AMERICAN RSDHOPE UPDATE - SEPTEMBER 24, 2006
AMERICAN RSDHOPE ANNOUNCES $7,500 DONATION TO ORGANIZATION MAKING RSD DOCUMENTARY!
DETAILS ON RSD DOCUMENTARY NOW AVAILABLE ON-LINE
ONLY 55 SPACES LEFT FOR RSD CONFERENCE IN 6 WEEKS!
1) AMERICAN RSDHOPE ANNOUNCES $7,500 DONATION TO ORGANIZATION MAKING RSD DOCUMENTARY!
In what they hope will just be the first of many organizations to donate, the American RSDHope Board of Directors approved a donation of $7,500 this month, September 2006, to the RSD Aid & Awareness Organization to be used for their upcoming Documentary on RSD.
You can read all the details about the donation and about this new RSD Documentary on our website;
http://www.rsdhope.org/ShowPage.asp?page_id=156
Here are some of the details!
Barry Adler and his wife formed a non-profit organization called RSD Aid & Awareness to raise funds to film a documentary on RSD. Barry's wife was diagnosed with RSD over a year ago. Barry happens to own a production company called Impactmedia and has an extensive background in media presentation having produced everything from feature films and television series to commercials and medical films. He and his wife soon learned what we all do, that very little seems to be known about RSD and so he was driven to do this project.
His plans are to film a documentary, take the moviegoer on a journey through the land of RSD through his eyes. He will also be interviewing other patients, their loved ones, Doctors, medical professionals, etc. He plans to bring the finished product to the various film festivals and eventually get it out to theaters across the US, Canada, and eventually ending up on television; possibly HBO or the Discovery Channel for instance.
it is an ambitious project and many of us in the community have talked about the need for just such a project for years but haven't had anyone with the knowledge or tools to get it done. Now we do. Now it is up to the community to step forward and put the funding in place to make sure this gets done. It will take a great deal of money to be sure. $7,500 is only the beginning.
American RSDHope is hoping other Organizations; RSD, Pain, Disability, whatever their affiliation, will step forward and match or beat our donation!
If you run a support group and have the finances, see if you can match it. If you need to, work with another group or two or ten to match it. Hold fundraisers!
Or just donate what you can, $1000, $500, any amount. Write to your local Masonic organizations, Lion's Clubs, or whatever fellowship organizations are active in your area and see if you can get them interested. Talk to your local newspaper and television station. Barry Adler will be more than happy to talk to anyone at anytime about this project if it will raise the awareness level of it and bring in some more funding.
In October, down in Fort Lauderdale, FL, they will be holding a large fundraiser for the RSD Aid & Awareness organization to raise money for the documentary. If you are down there, stop on by. I will share details on it in the coming weeks.
Barry will be bringing his camera crew to American RSDHope's RSD Conference in South Portland, Maine on November 3rd and 4th to tape some patient interviews and film parts of the conference for the documentary. If you haven't already made plans to be there we still have about 60 spaces left but they probably won't last past the end of the month so register quickly. It is going to be our best conference yet by the way with some amazing giveaways as well as the latest information on Ketamine and RSD and we will be sharing ways to ease your pain, always a good thing!
So please help us spread the word on this project! Stop by the website and learn all about it. Go to the link shown above and below or just stop by the main page and look under the WHAT'S NEW Section, you can't miss it! This is our chance to put RSD on the map folks! Imagine seeing a movie at the theatre on RSD! Or even on HBO! Then having it get to the Medical Schools! we can advance further in one year with this than we have in the last ten!
Thanks in advance for your help. If you have any questions, drop me an email ( RSDHope@mail.org ) or drop one to Barry Adler. His email is flatwins@myacc.net
2) DETAILS ON RSD DOCUMENTARY NOW AVAILABLE ON-LINE
RSD Documentary! Details!
http://www.rsdhope.org/ShowPage.asp?page_id=156
3) ONLY 55 SPACES LEFT FOR RSD CONFERENCE IN 6 WEEKS!
Here are the basics for you though
Cost is only $65 per person
WHAT DOES THAT INCLUDE?
It includes the Workshops on Friday and the main Conference on Saturday.
It includes sandwiches/chips/drinks/etc. on Friday night for those arriving before the Workshops
It includes a buffet breakfast on Saturday as well as a hot/cold buffet lunch and snack breaks!
It also includes all of the hand-outs, work-sheets, and even a free copy of the book " PERSISTENCE IS POWER, A REAL WORLD GUIDE FOR THE NEWLY DISABLED WORKER" By Jeanne Lazo and Carol Amato.
In addition, there will be some giveaways including over 20 books dealing with Coping with Chronic Pain!
You can register for the conference by going to our website, or by calling our office at 207 583 4589. We still have about 55 to 60 spots left.
We have some fantastic speakers too;
Doctor Ronald Harbut who, with Doctor Correll, developed the low-dose ketamine infusion method to treat RSD, will be presenting the latest information on ketamine and RSD as well as his latest patient treatment results. He will also present an overview of exactly how ketamine works with RSD to decrease the pain. Doctor Harbut has had papers published in peer-reviewed journals like the Journal of Pain Medicine and recently spoke at the AAPM's national meeting in San Diego, CA.
Doctor Allan Chino, author of "Validate Your Pain!: Exposing the Chronic Pain Cover-Up", will be focusing on "Beyond the Biomedical: Chronic Pain as a (Hidden) Signaling System". Currently in private practice near Portland, Oregon, Dr. Chino, Ph.D., ABPP is board certified in Clinical Health Psychology and Past President of the American Academy of Clinical Health Psychology. He serves on the Oregon Pain Management Commission which is charged with providing the legislature with recommendations for improving and removing barriers to the provision of effective, high-quality pain management services.
The conference will begin with Keith Orsini, one of the Directors of American RSDHope, as well as a 32 year survivor of RSD. Keith will be speaking about "Living Beyond Your Pain", focusing on how to live the life you want in spite of the pain. In our daily battle with pain we lose a little ground every day and in doing so we lose a little bit of ourselves. Pretty soon the life we have left isn't much of a life and is nothing like the life we wanted or intended for ourselves. Keith is going to show you some ways to change that!
There are also workshops on Friday evening, one for patients led by Doctor Chino and one for loved ones and friends led by some of our loved ones! Medical professionals are free to attend either workshop of course.
And don't forget, the RSD Documentary film crew will be there!
So if you had thought about coming to an RSD conference, this is the year to come. This is going to be the best conference we have ever had and we have had 8 others before this one! American RSDHope will not be holding a conference in 2007 and probably not in 2008 either so don't put it off until next time!
Less than 55 spots are left as of September 22, 2006, out of 200. The weather is not bad the first weekend in November here, about 50 degrees during the daytime, besides, you will be indoors! Drive up and see the foliage along the way! Or fly in, Portland Jetport services many Airlines including the discount airline JETBLUE! You can even take Amtrak to Portland now!
Check out all of the details by going to our conference webpage;
http://www.rsdhope.org/ShowPage.asp?page_id=48
Or you can call our home office at 207 583 4589
Don't delay folks, it is getting down to crunch-time!
Only $65 per person!
Please spread the word to your groups, fellow patients, Doctors, friends, listservs, email lists, etc. We would greatly appreciate it. We expect a full house again this year, 200 attendee's, and we are almost there already so get your registration in quickly!
Peace,
Keith Orsini
American RSDHope
www.RSDHope.org
National RSDS/CRPS Conference - November 3rd, 4th, 2006
http://www.rsdhope.org/ShowPage.asp?page_id=48
New RSD Documentary! Details!
http://www.rsdhope.org/ShowPage.asp?page_id=156
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